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Prader-Willi Syndrome (PWS) is caused by a very small deletion in the 15th chromosome. It is a random occurrence and to date there has been no discovery as to why this happens. Statistics suggest that the occurrence rate is 1:25,000 giving a population in New Zealand of approximately 230 people. The PWS Association (NZ) knows about 130.
Diagnosis is made through DNA testing and is almost always accurate. This can be done at all major medical centres in New Zealand.
The PWS Association (NZ) Inc is a support group for those who have the syndrome, their families, and all who come in contact with PWS. We are the leading resource centre for PWS in New Zealand. We have parent contacts in most centres and can put you in touch with a support person anywhere in New Zealand.